I am taking a break from blogging for a while. When I come back, the site will be different. Less pictures, less personal. Too many people are reading it and it feels uncomfortable. I don't know if it will disappear in the meantime or not- I'm not very tech savvy. I know everyone always wants to know how Virginia is doing. We are keeping her home from school until after Spring Break, but two of her teachers come work with her everyday. The cough is ok some days, a pain on others. The toughest thing right now is that she really wants to eat, and Findley and I just don't know what to do. We don't know how much eating contributes to the cough because we don't really know how much she aspirates. But what quality of life do you have if you can't eat?
I have a friend who had a major stroke which impacted every area of her life significantly, and she says the worst part by far was having a feeding tube for a year. That spoke volumes to me. We are just trying to figure it all out.
Virginia has also grown a lot taller in the last six months, and it is harder for me (or anyone else) to handle her alone. Getting in and out of her chair, bed, getting dressed...it's just tougher than it used to be, and I think we are going to have to change some things. Again, don't know exactly what it's going to look like, but am slowly trying to get a plan together.
Thank you as always for your prayers for our family, particularly Virginia.